As you know from my last couple of posts this year so far has sucked with a capital S. Apart from death and personal issues, the department that deals with Jacks transport (and the school nurse) decided that Jack could no longer travel to school without a trained escort travelling with him. The reason for this is Jacks seizures. I’ve written about them before I’m sure; he stops breathing and scares everyone witless. He needs oxygen and a drug called Stesolid to be administered if needed – and you have to be trained to give both. To cut a long story short (as usual) Jacks regular transport was withdrawn and Jacks school released one of his learning support assistants to be his escort – she is trained and she knows him very well. However – this was always going to be a temporary measure until a referral to Continuing Care was made. Continuing Care are responsible for taking Jacks case to panel which will hopefully provide funding and a nurse to travel with him on his journey to and from school.
Today was my meeting with a lady from Continuing Care – her name was Jill (Hi if you’re reading this 
). Together we discussed just about every aspect of Jacks life; medical needs, condition, communication…you name it, we discussed it. Jill will now visit Jack at school, talk to the school nurse and to Jacks teachers about Jack. She will also visit Respite and talk to them, and will then present her findings to panel on 19th April sometime in the afternoon…so…and here’s where you lot come in…lots of positive vibes to be sent our way please. There are no guarantees with this meeting, and being eternally pessimistic I am not holding out much hope….maybe not so much pessimism and realism! There are other avenues we can explore, but just for once it would be so nice if something could just get done without any bloody brick walls being shoved in front of us. Hell yeah it makes for an interesting life, but it doesn’t do wonders for stress levels I can tell you.
Apart from that all’s ok, Jack is growing up so fast it’s scaring me…he’s such a young man now.
